Government Waste and the NIH. Just some of my thoughts

[RRsilver]

Let me say that I'm all for cutting waste and fraud in government. I usually don't post anything political on here at BMR but seeing so many in support of what Elon is doing without understanding or caring about what DOGE is not doing. Digging in and actually finding the waste and fraud. Across the board cuts are lazy and will not fix anything. I'll be the first to cheer Elon on, when they start getting to the waste and fraud, without cutting the good things that are being done.

I have a rare disorder called Pulmonary Arterial Hypertension ( PAH) . The medication I take for it costs over $7,000 a month. I qualified for a grant to help me pay for the medicine. The medication I was on before this one, was $10,000 a month. If not for a grant, I could not afford this medication. It helps me have a higher quality of life and hopefully live longer. There is no cure for PAH. I found out I had this rare disease in Sept. 2017. It has a 70% mortality rate at 7 years after diagnosis. So, I'm one of the lucky ones that caught it early. There has been a lot of progress with this disease in the last 5 to 10 years. There are only 3000 people a year in the USA diagnosed with PAH making it very rare.
This post is not about me, it's about cuts to the NIH that the government is making. I don't know if grants like the one I was fortunate enough to get will be available for me and others in the future.
Research in all medical areas will suffer, with the cuts being made to the NIH. Cancer, diabetes, heart disease, and all the rest.
UAB, one of the top hospitals in the country for heart disease stands to lose 10's if not 100's of million in research dollars. It is the largest employer in the state of Alabama. How far will it set back the research in all these areas where we need to find a cure.The big ones I listed above will suffer, and the rare ones, that don't affect many people, who knows what will happen.
I'm for cutting waste in the government as much as anyone, but the way to get at waste is not across the board cuts. They need to dig into it and find actual waste. Across the board cuts, is the lazy way, and cuts a lot, that the government does that's actually good.

I pray that all the ''I love what Elon is doing folks'' don't ever need the lifesaving research that will be set back decades.

PAH Life Expectancy & Risk Status | WHO Functional Class

 

[str]

Wow !

It a rah, rah, fest until it isn't HH.

I am so sorry to hear that you have this condition and I can't imagine the frustration you must feel for living in the greatest country in the world and being left wondering about this.

People seem so wrapped up in which SIDE they are on that they forget we are really all on the same side. I hope no matter which SIDE someone feels they are on, realizing what is at stake for so many people should far outweigh arguing about something as empty as politics.
I wish you all the good fortune I can to stay well HH.

All the very best to you sir,

str

 

[harpo]

Let me say that I'm all for cutting waste and fraud in government. I usually don't post anything political on here at BMR but seeing so many in support of what Elon is doing without understanding or caring about what DOGE is not doing. Digging in and actually finding the waste and fraud. Across the board cuts are lazy and will not fix anything. I'll be the first to cheer Elon on, when they start getting to the waste and fraud, without cutting the good things that are being done.

I have a rare disorder called Pulmonary Arterial Hypertension ( PAH) . The medication I take for it costs over $7,000 a month. I qualified for a grant to help me pay for the medicine. The medication I was on before this one, was $10,000 a month. If not for a grant, I could not afford this medication. It helps me have a higher quality of life and hopefully live longer. There is no cure for PAH. I found out I had this rare disease in Sept. 2017. It has a 70% mortality rate at 7 years after diagnosis. So, I'm one of the lucky ones that caught it early. There has been a lot of progress with this disease in the last 5 to 10 years. There are only 3000 people a year in the USA diagnosed with PAH making it very rare.
This post is not about me, it's about cuts to the NIH that the government is making. I don't know if grants like the one I was fortunate enough to get will be available for me and others in the future.
Research in all medical areas will suffer, with the cuts being made to the NIH. Cancer, diabetes, heart disease, and all the rest.
UAB, one of the top hospitals in the country for heart disease stands to lose 10's if not 100's of million in research dollars. It is the largest employer in the state of Alabama. How far will it set back the research in all these areas where we need to find a cure.The big ones I listed above will suffer, and the rare ones, that don't affect many people, who knows what will happen.
I'm for cutting waste in the government as much as anyone, but the way to get at waste is not across the board cuts. They need to dig into it and find actual waste. Across the board cuts, is the lazy way, and cuts a lot, that the government does that's actually good.

I pray that all the ''I love what Elon is doing folks'' don't ever need the lifesaving research that will be set back decades.

PAH Life Expectancy & Risk Status | WHO Functional Class

That's your CROSS to HOLD if U Had the FAITH of a MUSTARD SEED well U SEEM NOT 2 so CONTINUE in your LEFTIST ways & continue to BLAME others & GOD. And PRAY to O'BAMA & SATAN so fuumfhoaah !!!!!!!!!!!!!!

 

[RRsilver]

That's your CROSS to HOLD if U Had the FAITH of a MUSTARD SEED well U SEEM NOT 2 so CONTINUE in your LEFTIST ways & continue to BLAME others & GOD. And PRAY to O'BAMA & SATAN so fuumfhoaah !!!!!!!!!!!!!!

Not sure what you are talking about. Have you never lost anyone to cancer, diabetes, or heart disease. If so, I guess it was their fought. Finding a cure for cancer, would be awesome. Its a shame that you dont feel that way.

 

[RRsilver]

Wow !

It a rah, rah, fest until it isn't HH.

I am so sorry to hear that you have this condition and I can't imagine the frustration you must feel for living in the greatest country in the world and being left wondering about this.

People seem so wrapped up in which SIDE they are on that they forget we are really all on the same side. I hope no matter which SIDE someone feels they are on, realizing what is at stake for so many people should far outweigh arguing about something as empty as politics.
I wish you all the good fortune I can to stay well HH.

All the very best to you sir,

str

Thanks str,
I was trying to keep my post as short as I could. UAB is just one of many research Hospitals across the country that will have massive cuts. I was just using it as an example. I go to Vanderbilt to see my lung Dr. I'm sure they will be in the same boat.
Like what you were saying about it, not mattering what side a person is on. It's just numbers until it affects you, or someone you know and/or care about. It puts the human side to it, and not just the data.

 

[str]

Thanks str,
I was trying to keep my post as short as I could. UAB is just one of many research Hospitals across the country that will have massive cuts. I was just using it as an example. I go to Vanderbilt to see my lung Dr. I'm sure they will be in the same boat.
Like what you were saying about it, not mattering what side a person is on. It's just numbers until it affects you, or someone you know and/or care about. It puts the human side to it, and not just the data.

Yeah. The reality and the human side is real life . Having always lived very close to NIH in Md. , I know very well all that they accomplish. I’ve had several people close to me be treated there. Unfortunately, more times than not it is not a place you typically get to walk away from eventually. It’s more like a place you need to continue to live.
Cancer and serious diseases including autoimmune diseases do not know age, race, faith, sex , nationality or political affiliation.
Some of us have to live with these diseases.
And while waste and fraud should always be combated, and eradicated, it can be accomplished without a dog and pony show to rally politically motivated hatred between people at affected peoples expense.
There’s more than one way to accomplish this.
Man, I can’t stand this divide nonsense.

Again, GL sir.